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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I've Been Subscribed Jardiance Along With My Vyndaquel. Is Anyone Else Using This Drug, And Have You Seen Results?

A MyAmyloidosisTeam Member asked a question 💭
Palm Beach Gardens, FL
February 18, 2024
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A MyAmyloidosisTeam Member

How did you get to take tafamidis without it being in your heart? I have WTATTR not in my heart yet but I was told I can't get it until it gets in my heart Joe

August 15, 2024
A MyAmyloidosisTeam Member

I take Jardiance and Vyndamax. My cardiologist says it might help ejection fraction.

March 17, 2024
A MyAmyloidosisTeam Member

I am on Vyndamax for ATTR CARDIAC WILD TYPE and my cardiologist prescribed Jardiance for swelling but I was not able to take the Jardiance. We now have my swelling under control with Aldactone.

February 22, 2024
A MyAmyloidosisTeam Member

I take Vyndamax and Jardiance.I think it is helping slowing the amyloidosis not sure I think I am having an ECO in May to see if working,

February 21, 2024
A MyAmyloidosisTeam Member

That’s encouraging about Jardiance. I recently discovered I had Anemia, very low hemoglobin. Received a transfusion, and feel much better. Apparently had some bleeding internally. It stopped, and now doctors are recommending I get off Elequis. with a Watchman. Make sure Ben checks his blood count. Don’t know if it had anything to do with myamyloidosis, but who knows.

February 20, 2024

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