not much due to nerve damage, nerves and muscles aren't working together, but thanks. Amyloidosos kills the Axons nerve cells permanently

watch that your BP doesn't go too low if it does take hydrocortisone see Endocrinology amyloidosis specialist. Do your ankles swell feet etc do your retain fluid ? Do you take Lasix water pill. Whaya your BNP measure of heart failure on a blood test normal is up to 100. Dave

after JUDY AMYLOIDOSIS

for balance try meclazine dramamine chewable non.drowsey. Prednisone try 10mg to 20mg can be a nerve causing balance problem get an audiologist test and MRI from ent dept.re vestibular issues.Which amyloiddosis do yo have Judy? ItsttCKS THE NERVOUS SYSTEM AND IS. INFLAMMATORY.AND SYSTEMIC

Dave,I was diagnosed in January 2024 with Hereditary Amyloidosis. I started Vyndamax then.Can breathe a little easier,but not much change to date. Requip is by Rx and has a generic,Ropinerol.My skin seems drier,just more lotion.I live in South Georgia,about 3 hours from the Gulf of Mexico.My happy place. But,with my balance issues had to quit walking on the beach.The ocean brings me so much peace ! Hope all the best for you !