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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have Very Severe Poly Neuropathy What Can I Do? I Have To Use A Walker Nerve Damage Re EMG. Sudden Severe Pain Back Of Legs

A MyAmyloidosisTeam Member asked a question 💭
Fresno, CA

calf and hamstring muscles severe pain when standing or trying to walk

May 1
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Foods To Avoid With Amyloidosis Read Article...
A MyAmyloidosisTeam Member

Dave,I was diagnosed in January 2024 with Hereditary Amyloidosis. I started Vyndamax then.Can breathe a little easier,but not much change to date. Requip is by Rx and has a generic,Ropinerol.My skin seems drier,just more lotion.I live in South Georgia,about 3 hours from the Gulf of Mexico.My happy place. But,with my balance issues had to quit walking on the beach.The ocean brings me so much peace ! Hope all the best for you !

May 5
A MyAmyloidosisTeam Member

Dave2,I have neuropathy in both feet with Restless Legs.I take Requip.Some days it is below my ankles other above my ankles.I too use a walker.Have had my knees buckle. PT seem to make my legs hurt more.I have an over sized heating pad I use for the pain,it helps.

May 3
A MyAmyloidosisTeam Member

not much due to nerve damage, nerves and muscles aren't working together, but thanks. Amyloidosos kills the Axons nerve cells permanently

May 1
A MyAmyloidosisTeam Member

watch that your BP doesn't go too low if it does take hydrocortisone see Endocrinology amyloidosis specialist. Do your ankles swell feet etc do your retain fluid ? Do you take Lasix water pill. Whaya your BNP measure of heart failure on a blood test normal is up to 100. Dave

May 12
A MyAmyloidosisTeam Member

after JUDY AMYLOIDOSIS

May 5

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