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A MyAmyloidosisTeam Member asked a question 💭
Carrollton, GA

On two pairs of walks I have noticed significant improvement in breathing and consequently energy soon after getting my lung drained. I am walking on hilly neighborhood streets. On first walk prior to having my lung drained I am winded walking up a steep hill. Next morning I had my lung drained and later in the day upon repeating the same walk, I observed significant improvement in breathing and consequently improvement of energy. I did the same experiment later , before and after getting… read more

June 20, 2024
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Reactions
A MyAmyloidosisTeam Member

And Beverly, that is the $ million question. Why do my blood vessels leak? Give me a month or so to rummage around the Internet to answer your question. I think part of the problem has been my low blood pressure. Cardiologist has gradually raised it up to my family's normal (100+, 60+).

June 26, 2024
A MyAmyloidosisTeam Member

In simple terms it’s fluid around the lungs

June 26, 2024
A MyAmyloidosisTeam Member

Sally, I am pleased that your pleural effusion is working so well for you. That is great news!

June 21, 2024
A MyAmyloidosisTeam Member

Haven’t had those issues but I see a pulmonary doctor for shorten of breath and I receive chest X-rays to check for any lung issues . If you’re having these issues please stay in touch with your specialist on these issues . I pray that you get some relief if you’re having problems such as breathing.
Have a Blessed Day 🙏🏽

June 20, 2024
A MyAmyloidosisTeam Member

Wow, Vern. Seems so complicated! But I can certainly see how this procedure must be a relief and a God-send for you! God bless you and your wife, Vern. Will there ultimately be a more streamlined, easier way for the doctors to keep your blood vessels from releasing so much fluid? I certainly hope so. Thanks for such a thorough explanation.

June 26, 2024

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