After Diagnosed, Pacemaker, Carpal Tunnel Surgery, Not Able To Walk On Own, So Much Swelling, How Long Before It’s The End Time. | MyAmyloidosisTeam

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After Diagnosed, Pacemaker, Carpal Tunnel Surgery, Not Able To Walk On Own, So Much Swelling, How Long Before It’s The End Time.

A MyAmyloidosisTeam Member asked a question 💭
posted June 30
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A MyAmyloidosisTeam Member

I hope you are medicated with a well-known Amyloidosis medication. Your life could be prolonged significantly if you follow your Drs, orders. Have faith in a power greater than yourself & trust him to do what you could not do for yourself.

Hang in there & ride the storm out, Wish You Well!

posted July 1
A MyAmyloidosisTeam Member

The life expectancy for someone with amyloidosis can vary widely based on several factors, including the type of amyloidosis, the stage at diagnosis, and the presence of other health issues. Here are some key points:

- Stages of AL Amyloidosis:
- Stage 1: Average of 9.8 years after diagnosis.
- Stage 2: Average of 6... read more

The life expectancy for someone with amyloidosis can vary widely based on several factors, including the type of amyloidosis, the stage at diagnosis, and the presence of other health issues. Here are some key points:

- Stages of AL Amyloidosis:
- Stage 1: Average of 9.8 years after diagnosis.
- Stage 2: Average of 6.3 years after diagnosis.
- Stage 3: Average of 5.3 years after diagnosis.
- Stage 4: Average of 2.3 years after diagnosis.

- hATTR Amyloidosis:
- Early-onset with V30M mutations: About 12 years after diagnosis.
- Late-onset: Around 7 years after diagnosis.

- Other Factors:
- Severe heart problems can worsen the prognosis.
- Abnormal blood cell levels that don't normalize after treatment can also lead to a worse outcome.

Given the complexity of the condition, it's essential to discuss your specific situation with your healthcare provider for a more personalized prognosis.

 This AI-generated response comes from MyAmyloidosisTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

What’s the Life Expectancy With hATTR Amyloidosis? | MyAmyloidosisTeam
Can Amyloidosis Be Cured? | MyAmyloidosisTeam
posted June 30

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