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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do insurance companies eventually pay for Vyndamax? My company is fighting "prior approval" even though I have had a PVP nuclear scan.

A MyAmyloidosisTeam Member asked a question 💭
Sun City Center, FL

I have wild Amy. Do I need to do invasive heart tissue biopsy?

July 7, 2024
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Reactions
A MyAmyloidosisTeam Member

Thanks Joel
I got my Vyndamax 2 days ago. It took a total of 4 weeks. Insurance company wanted invasive heart biopsy but my doctor convinced them to take results from PVP nuclear scan. Heart biopsy is risky and not necessary.
Ed

July 14, 2024
A MyAmyloidosisTeam Member

I also have Amy wild and Mayo Clinic in Rochester said the heart biopsy wasn’t necessary after the other test they ran.

July 13, 2024

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Tafamidis therapy prophylactically?

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May 10, 2023

Some members are on Vyndamax(Tafadamis) + Amvuttra. My doctor thought Medicare would only approve one, not both. I'd appreciate your comment

A MyAmyloidosisTeam Member asked a question 💭
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I have wtATTR with polyneuropathy. Why cant I be prescribed Amvutra before heart damage occurs or worsens. I do have Afib. It seems senseles

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