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A MyAmyloidosisTeam Member asked a question 💭
Turlock, CA

Been exercising for a couple of days and seems like I have excess fluid in legs now.

September 1, 2024
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Answer Summary

Members discussed unexpected leg swelling after exercise, with several offering potential causes including high sodium intake from processed... Read more

Members discussed unexpected leg swelling after exercise, with several offering potential causes including high sodium intake from processed foods, insufficient blood circulation from seated workouts, and heat exposure. Many members shared practical solutions that have worked for them, including tracking daily sodium levels below 2300mg, using compression socks, trying leg massage devices like the Tactile Medical pump (which some insurance plans including Medicare and VA now cover), and incorporating standing movements to improve circulation. A recurring theme was the importance of consulting doctors about persistent swelling and advocating for medical equipment coverage through insurance, with members offering encouragement and sharing their own ongoing struggles with fluid retention management.

A MyAmyloidosisTeam Member

I bet they will. My insurances are Medicare and CHAMPVA which is Tricare. Tricare picked up everything Medicare didn't cover.

September 8, 2024
A MyAmyloidosisTeam Member

Andre, seating exercise does not enhance blood flow to your extremities. Insufficient ventricular pumping can cause a backup of fluids. There may be other causation. Go see your doctor!!

September 4, 2024
A MyAmyloidosisTeam Member

Andre, the pump is made by Tactile Medical. (YouTube has loads of video how-to's.) And I love the pump. Not only does it give a great 60 minute leg massage it really makes the swelling go down fast. There is an actual pump to which the two plastic "legs" connect. You pull up the plastic legs over your legs just as if you were pulling on stockings. When you activate the pump it fills the legs with air until it is tight around your legs. Then it starts a massage from your feet up to your groin and when it goes back down, it starts the massage process over again. My occupational therapist ordered it and the wraps. While my insurance covered both my therapist said that Medicare is paying for a lot of this kind of equipment now.

September 7, 2024
A MyAmyloidosisTeam Member

Rarely eat out, keep track of sodium levels by trying to stay under 2300 mg per day and been doing good. Most of the seated exercises do require a lot of movement like the stand and lift and the seated marches. Also using a seated elliptical. Already spoke with doctors and waiting for new compression socks. Wish me luck.

September 4, 2024
A MyAmyloidosisTeam Member

Andre, what is your daily diet like? Too.much sodium from can be from nearly all processed foods, all deli meats, some cheeses, and all restaurant food contributes to fluid retention and weight gain, bloating, etc.

September 4, 2024

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