How Is The "progress" Of Amyloidosis Measured? I've Been On Vyndamax For 2 Years. What Should I Be Looking For?
My Amyloidosis Diagnosis came after various Hear Issues...Afib, Aflutter, Heart Blockage. I have 3 stents, and ICD Implant and I'm on Sotolol to control Heart Rate. This in addition to Blood Thinners, etc.
If you read the Vyndamax Patient Information that comes with the meds it says that using vyndamax reduces mortality and hospitalizations. I'm not certain of the statistical significance though. Not my strong suit. Perhaps others can weigh in?
So very true Joel! See you on the 5th.
I have had to accept the unpleasant reality that maintaining my current health, strength and stamina is a notable accomplishment and that exercising as hard as I want to is actually counter-productive. I understand that Vyndamax halts disease progress but doesn't reverse damage, or at least only allows normal bodily processes to help very slowly. One man's opinion....
The progression of AL amyloidosis is measured using various tests and biomarkers. Here are some key points:
- Biomarkers: Blood or urine tests measure molecules that indicate disease presence. For heart damage, biomarkers include
- NT-proBNP: Produced by the heart when it starts to fail.
- Cardiac troponin T: read more
This AI-generated response comes from MyAmyloidosisTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.
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