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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Amyloid In The GI Tract

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

I have amyloid in my GI tract and after 2 years of treatment I feel like I’ve plateaued. I hope not because it’s still not great. Anyone out there still getting better?

October 26, 2024
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A MyAmyloidosisTeam Member

I do two things that seem to be helping me; I started taking a probiotic daily and every morning I start most days with squeezing half a lemon, a Tbsp of Apple Cider Vinegar, a little grated ginger, and a dash of honey mixed in a little water and suck it down through a straw. Ever since I started doing these two things my bloating/burping seem to be much, much less. Way less. The gut just feels a lot better. I still have some diarrhea issues, but that seems to be more manageable too. No plateau yet, I don’t think. Two steps forward, one step back but we just keep on truckin’ the best we can. :-)

October 26, 2024
A MyAmyloidosisTeam Member

Yea Andre that’s not my problem. Believe me! My GI tract is definitely clear! 😹

October 30, 2024
A MyAmyloidosisTeam Member

Theresa, thank you for the recommendation.

October 27, 2024
A MyAmyloidosisTeam Member

Peter I found the Cadillac of diapers! Parentgiving.com I won’t use anything else!

October 26, 2024
A MyAmyloidosisTeam Member

Betty, I also have Familial Amyloidosis Polyneuropathy.
I've seen a GI who is on the Amyloidosis Team at Washington University in St. Louis. I saw her Nurse Practitioner about 2 to 3 weeks ago. She recommended that I use Metamucil in the morning. I do this an hour before I eat. Then in the afternoon I take an
Imodium an hour before our evening meal. I understand what you are saying, though, many times I have felt like I just couldn't leave the house. This current regimen works sometimes. But not always. 😟 I hope you find someone who can help you.

October 26, 2024

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