I have amyloid in my GI tract and after 2 years of treatment I feel like I’ve plateaued. I hope not because it’s still not great. Anyone out there still getting better?
I do two things that seem to be helping me; I started taking a probiotic daily and every morning I start most days with squeezing half a lemon, a Tbsp of Apple Cider Vinegar, a little grated ginger, and a dash of honey mixed in a little water and suck it down through a straw. Ever since I started doing these two things my bloating/burping seem to be much, much less. Way less. The gut just feels a lot better. I still have some diarrhea issues, but that seems to be more manageable too. No plateau yet, I don’t think. Two steps forward, one step back but we just keep on truckin’ the best we can. :-)
Yea Andre that’s not my problem. Believe me! My GI tract is definitely clear! 😹
Theresa, thank you for the recommendation.
Peter I found the Cadillac of diapers! Parentgiving.com I won’t use anything else!
Betty, I also have Familial Amyloidosis Polyneuropathy.
I've seen a GI who is on the Amyloidosis Team at Washington University in St. Louis. I saw her Nurse Practitioner about 2 to 3 weeks ago. She recommended that I use Metamucil in the morning. I do this an hour before I eat. Then in the afternoon I take an
Imodium an hour before our evening meal. I understand what you are saying, though, many times I have felt like I just couldn't leave the house. This current regimen works sometimes. But not always. 😟 I hope you find someone who can help you.
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