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Amyloid In The GI Tract

A MyAmyloidosisTeam Member asked a question 💭
Nassau county, NY

I have amyloid in my GI tract and after 2 years of treatment I feel like I’ve plateaued. I hope not because it’s still not great. Anyone out there still getting better?

October 26, 2024
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A MyAmyloidosisTeam Member

I do two things that seem to be helping me; I started taking a probiotic daily and every morning I start most days with squeezing half a lemon, a Tbsp of Apple Cider Vinegar, a little grated ginger, and a dash of honey mixed in a little water and suck it down through a straw. Ever since I started doing these two things my bloating/burping seem to be much, much less. Way less. The gut just feels a lot better. I still have some diarrhea issues, but that seems to be more manageable too. No plateau yet, I don’t think. Two steps forward, one step back but we just keep on truckin’ the best we can. :-)

October 26, 2024
A MyAmyloidosisTeam Member

Yea Andre that’s not my problem. Believe me! My GI tract is definitely clear! 😹

October 30, 2024
A MyAmyloidosisTeam Member

Theresa, thank you for the recommendation.

October 27, 2024
A MyAmyloidosisTeam Member

Peter I found the Cadillac of diapers! Parentgiving.com I won’t use anything else!

October 26, 2024
MyAmyloidosisTeam

Living with amyloidosis in the gastrointestinal (GI) tract can be challenging. It's important to remember that treatment outcomes can vary widely among individuals. Here are some key points from my knowledge base that might be helpful:

- Treatment Duration: It's not uncommon for progress to feel slow or to plateau after a Show Full Answer

Living with amyloidosis in the gastrointestinal (GI) tract can be challenging. It's important to remember that treatment outcomes can vary widely among individuals. Here are some key points from my knowledge base that might be helpful:

- Treatment Duration: It's not uncommon for progress to feel slow or to plateau after a period of treatment.
- Symptoms: GI symptoms of amyloidosis can include diarrhea, constipation, and weight loss.
- Support: Engaging with a support network, such as MyAmyloidosisTeam, can provide valuable insights and encouragement from others who understand your experience.

If you feel your progress has stalled, it might be beneficial to discuss this with your healthcare provider to explore any additional treatment options or adjustments.

October 26, 2024

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