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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 29, 2025
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A MyAmyloidosisTeam Member

Thanks for the info.

April 2, 2025
A MyAmyloidosisTeam Member

I have Amy type AL. My heart was not a problem originally but over time my pulse would be in the lower 40s and sometimes in the upper 30s.I wore a halter for a while and my pulse rate would at times hit 150+ at night so a loop recorder was installed and every thing seamed normal. until 1 day the heart doctor called and told me. to go directly to the ER because of I had a Ventricular Tachyacardia the night before. Sent me home after 1 night in hospital with a monitor that hooks to if I have anything of concern happens the moniot will call the heart doctors and report in.
Nothing else has been recorded.

April 1, 2025
A MyAmyloidosisTeam Member

I have AL but the drs decided to put in a pacemaker when my heart rate was 35 😳

March 31, 2025
A MyAmyloidosisTeam Member

I do have a pacemaker because of a slow heartbeat. Surgery was before I was diagnosed with Amyloidosis.

March 30, 2025
MyAmyloidosisTeam

Common heart-related symptoms that may lead to pacemaker consideration in wild-type amyloidosis include irregular heartbeat (atrial fibrillation or arrhythmia), heart beating too fast or too slow, and dizziness. These symptoms occur because amyloid deposits make the heart muscle thick and stiff, affecting its ability to Show Full Answer

Common heart-related symptoms that may lead to pacemaker consideration in wild-type amyloidosis include irregular heartbeat (atrial fibrillation or arrhythmia), heart beating too fast or too slow, and dizziness. These symptoms occur because amyloid deposits make the heart muscle thick and stiff, affecting its ability to beat properly. When the heart's ability to fill with blood between beats is impaired, it results in less blood being pumped and less oxygen carried throughout the body. This can cause shortness of breath, heart palpitations, and chest pressure. If you experience any of these symptoms, it's important to contact your healthcare provider right away for proper evaluation. It's particularly important to note that some common heart medications used for other cardiac conditions may be harmful to people with wild-type amyloidosis. This makes getting an accurate diagnosis crucial before starting any treatment, including pacemaker installation.

March 29, 2025

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Milton Keynes, UK