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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 22, 2025
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A MyAmyloidosisTeam Member

Shirley, there are many Grants that either help or pay for expensive
prescriptions. Please google 'Amyloidosis Grants'. & start asking everyone
about grants &

May 16, 2025
A MyAmyloidosisTeam Member

Thanks, I think he is trying. However FYI there is another company that I currently use, I spoke to them and if Pfizer doesn't approve me They can help me. I would be paying them $10.00 a month. Advocate MY Meds. They help me with Jardiance and Bretzi. Very helpful.

April 24, 2025
MyAmyloidosisTeam

The high cost of Vyndamax is a common concern, but there are several ways to make it more affordable. The first step is to contact the drug manufacturer directly to ask about their assistance programs. Many pharmaceutical companies offer programs specifically designed to help cover copays or medication costs, especially for Show Full Answer

The high cost of Vyndamax is a common concern, but there are several ways to make it more affordable. The first step is to contact the drug manufacturer directly to ask about their assistance programs. Many pharmaceutical companies offer programs specifically designed to help cover copays or medication costs, especially for newer, more expensive medications. It's also important to carefully review your medical bills and insurance coverage. Request detailed, itemized bills and compare them with your Medicare explanation of benefits (EOB). If managing these financial aspects feels overwhelming, consider asking a family member, friend, or patient advocate to help you navigate the process. Don't ignore the financial aspect, as this could lead to more difficulties later. Remember that Vyndamax (tafamidis) is an FDA-approved medication that has shown effectiveness in slowing the progression of ATTR amyloidosis and reducing the risk of cardiac-related hospitalization. While the cost concerns are valid, there are usually options available to help make this important medication more accessible.

April 22, 2025
A MyAmyloidosisTeam Member

Shirley I’ve been fortunate enough to have my Vyndamax paid by my health care provider. Originally they sent me a letter that they would no longer cover the Vyndamax. Fortunately my specialty pharmacy reached out to my health care provider and structured payment through April 2026. Have your cardiologist reach out to the pharmacy and see if they will contact Pfizer for you.

April 24, 2025
A MyAmyloidosisTeam Member

I am on an advantage plan and I was able to join the Medicare Prescription Payment program (MPPP). You end up paying < $200 payment every month to cover the cost of my prescriptions including Vyndamax, the most expensive of my meds by far. It's only good through the end of 2025, though.

April 23, 2025

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