Connect with others who understand.

sign up log in
About MyAmyloidosisTeam

First-Ever World Amyloidosis Day on October 26

Posted on October 04, 2021
Article written by
Victoria Menard

On Oct. 26, the first-ever World Amyloidosis Day will be celebrated across the globe. World Amyloidosis Day, organized by the Amyloidosis Alliance and international patient organizations, aims to raise awareness of the average four-year delay individuals with amyloidosis face in being diagnosed.

Using the symbol of a link and the slogan “be the link,” World Amyloidosis Day seeks to unite individuals with amyloidosis, their caregivers, health care professionals, and the general public in the fight against amyloidosis. As the holiday’s official Twitter page stated, “Talking about #amyloidosis is a way of fighting it!”

World Amyloidosis Day is also calling on caregivers, medical professionals, and individuals living with amyloidosis to participate in the holiday by sharing their “Amylostory.” These testimonials will help highlight the unique lived experiences of those with the disease and the people who love and care for them.

On Oct. 26, World Amyloidosis Day ambassador Éric-Emmanuel Schmitt — a globally acclaimed novelist, playwright, actor, and director — will read one of these stories in the live “My Amylostory” miniseries. Those interested in taking other actions to spread the word can organize online or local events — including contests, artistic performances, and more — and share them on social media using the hashtag #bethelink.

The miniseries, as well as further information about World Amyloidosis Day, can be found on its social media pages, including Facebook, Twitter, and Instagram. The World Amyloidosis Day website also offers resources for those interested to share on their own social media accounts, including a World Amyloidosis Day infographic. There’s even a World Amyloidosis Day profile picture frame for Facebook users to raise awareness of amyloidosis and World Amyloidosis Day.

Learn more about amyloidosis.

All updates must be accompanied by text or a picture.
Victoria Menard is a writer at MyHealthTeam. Learn more about her here.

Related articles

Although life with amyloidosis can present a variety of challenges, people diagnosed with the...

Living With Amyloidosis

Although life with amyloidosis can present a variety of challenges, people diagnosed with the...
While a diet can’t cause, prevent, or treat your amyloidosis, eating healthy may help you avoid...

Eating a Healthy Diet With Amyloidosis

While a diet can’t cause, prevent, or treat your amyloidosis, eating healthy may help you avoid...
Amyloidosis isn’t caused by foods that a person eats. Diet changes can’t prevent or treat this...

Foods To Avoid With Amyloidosis

Amyloidosis isn’t caused by foods that a person eats. Diet changes can’t prevent or treat this...
People with amyloidosis may be eligible for additional doses of the Pfizer and Moderna COVID-19...

Are People With Amyloidosis Eligible for Moderna and Johnson & Johnson Booster Shots?

People with amyloidosis may be eligible for additional doses of the Pfizer and Moderna COVID-19...
To determine how you can reduce your medical expenses, MyAmyloidosisTeam sat down with Susan...

How To Reduce Medical Bills: Top Financial Expert Shares 10 Tips

To determine how you can reduce your medical expenses, MyAmyloidosisTeam sat down with Susan...
Vaccines against the coronavirus are likely to be as safe for people with amyloidosis as they...

Amyloidosis and COVID-19 Vaccines: Q&A With Dr. Tuchman

Vaccines against the coronavirus are likely to be as safe for people with amyloidosis as they...

Recent articles

Amyloidosis is a rare disease caused by the buildup of abnormal proteins (amyloids) in the organs...

Does Amyloidosis Cause Weight Gain?

Amyloidosis is a rare disease caused by the buildup of abnormal proteins (amyloids) in the organs...
Amyloidosis occurs when abnormal proteins, called amyloids, build up in the blood. Amyloids can...

Symptoms of Cardiac Amyloidosis

Amyloidosis occurs when abnormal proteins, called amyloids, build up in the blood. Amyloids can...
Rarely, joint pain may be a symptom of amyloidosis. Amyloidosis-related joint pain may be...

Does Amyloidosis Cause Joint Pain?

Rarely, joint pain may be a symptom of amyloidosis. Amyloidosis-related joint pain may be...
It takes a village to support living with a chronic condition like amyloidosis. Whether other...

Find Your People on MyAmyloidosisTeam

It takes a village to support living with a chronic condition like amyloidosis. Whether other...
You can never ask too many questions on MyAmyloidosisTeam. Other members are here to support you,...

Share and Receive on MyAmyloidosisTeam

You can never ask too many questions on MyAmyloidosisTeam. Other members are here to support you,...
A great first step on MyAmyloidosisTeam is to share your story with other members. Introducing...

Tell Your Story on MyAmyloidosisTeam

A great first step on MyAmyloidosisTeam is to share your story with other members. Introducing...
MyAmyloidosisTeam My amyloidosis Team

Thank you for signing up.

close