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Members overwhelmingly confirmed that fatigue worsens significantly in hot weather, with many describing it as a major challenge that forces... Read more
So sorry you are having so much pain. If you have Wylde Type Amyloidosis, i hope you can get your hands on Vyndamax or Amvuttra with doctors consent. ATTR seems to find all parts of your body to attack. Hope some of these medicines help you. Living alone isn't much fun while you suffer. I too have had major back surgery along with everything else but I am trying to be optimistic and keep my doing as much as I can to keep my life normal. Feel better!!!!
Thanks, I want to think in a positive manner. It's just getting very difficult. God help me.
Absolutely
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Me too.....I want to be positive but sometimes it's hard !!