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A MyAmyloidosisTeam Member asked a question 💭
Frostproof, FL
June 22, 2025
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Aortic Stenosis, Heart Murmurs, and ATTR Amyloidosis: How They’re Connected Read Article...
MyAmyloidosisTeam

How can I participate in clinical trials for ATTR-CM amyloidosis treatment research?

Clinical trials are essential research studies that test new and emerging treatments for amyloidosis. Some exciting developments include:

• New antibodies targeting amyloid proteins
• CAR T-cell therapy that engineers immune cells
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How can I participate in clinical trials for ATTR-CM amyloidosis treatment research?

Clinical trials are essential research studies that test new and emerging treatments for amyloidosis. Some exciting developments include:

• New antibodies targeting amyloid proteins
• CAR T-cell therapy that engineers immune cells
• Gene-editing technology like CRISPR (NTLA-2001) designed to delete the TTR gene in the liver To participate in a clinical trial:

1. Discuss your interest with your healthcare provider
2. Work with a doctor who specializes in amyloidosis
3. Have your care team help identify trials you may be eligible for
4. Review whether the available trials might be a good fit for your specific situation

Remember that participating in clinical trials helps researchers better understand the effects of new treatments and potentially advance future therapies.

June 22, 2025
A MyAmyloidosisTeam Member

Please see information that may help answer your question contained within the following link:

https://g.co/gemini/share/6e47603bbc92

One of my brothers told me just a few days ago that there is a clinical trial being held somewhere for a one off treatment to stop the progression of ATTR amyloidosis in its tracks. I for one certainly hope so. 🙏🏼

July 2, 2025

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