Thanks

I still don't know for sure what type I have.?? Have i5 in lungs, heart, skin and now feet. I have asked a couple doctors, but they never really tell me. I thought they had to know type to determine treatment and prognosis?????

Shirley, I'm stuck with Peripheral Neuropathy and Cardiomiopathy. So seems like I have every symptom in the book. I go to my doctors every 6 months and nothing much changes. I still have pain in every place I can name. But, I can deal with it.

Yes. I have ATTRh CMN. I have numbness and tingling in both feet. It feels like socks are bunched up under my toes on both feet. I have exercises that I do but I can’t see much improvement yet.

Good morning Shirley, I have some numbness in the left foot toe area but not in my right foot. Nothing severe just bothersome. I do have some nerve issues throughout my body causing poor balance and some light headedness. Again struggling though as I’m sure you are. I wish you the best as we struggle through this disease.