Balance issues can be a real challenge with wild-type ATTR, and it's understandable that you're looking for ways to help your husband feel steadier and safer. With ATTR, nerve involvement can contribute to balance problems, and recovering from a serious illness like pneumonia can also weaken muscles and affect stability.
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Balance issues can be a real challenge with wild-type ATTR, and it's understandable that you're looking for ways to help your husband feel steadier and safer. With ATTR, nerve involvement can contribute to balance problems, and recovering from a serious illness like pneumonia can also weaken muscles and affect stability.
Here are some practical steps that may help:
- Talk to his doctor about the balance issues specifically — they can assess whether it's related to his ATTR progression, a side effect of Vyndamax, or a result of deconditioning after pneumonia
- Ask for a physical therapy referral — a physical therapist can design a safe exercise program tailored to his needs and abilities to help rebuild strength and improve balance
- Ask for an occupational therapy referral — an occupational therapist can help him perform everyday tasks more comfortably and safely
- Make home adaptations — things like grab bars, removing trip hazards, and using a walker or cane can reduce fall risk It's also worth keeping an eye on his overall nutrition and hydration, as weakness and fatigue from poor nutrient absorption can worsen balance. Eating smaller, more frequent meals and staying well hydrated can support his overall strength and recovery.
Don't hesitate to bring up any new or worsening symptoms at his next appointment — his care team can adjust his plan as needed.
July 31
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