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A MyAmyloidosisTeam Member asked a question 💭
July 10, 2025
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A MyAmyloidosisTeam Member

Good morning Shirley, It is now three months since I started taking Tafamidis and the results so far are encouraging. No apparent side-effects, I still feel lethargic and a trip upstairs is an effort but there are two improvements that I attribute to these tablets. First and foremost my personal ecg device now consistently shows a regular heartbeat whereas previously PAC and PVC heart valve defects were the norm. Only my next echogram will confirm the readings of this simple device that costs the NHS around the price of one tablet !!!. Secondly, my tastebuds are almost back to normal and I almost forgot, my blood pressure is down.

July 10, 2025
MyAmyloidosisTeam

Vyndamax (tafamidis) works by attaching to TTR proteins and preventing them from forming amyloid fibrils. It's specifically FDA-approved to treat amyloidosis-related heart disease and heart failure. The medication helps stabilize the transthyretin protein, which can help prevent harmful amyloid deposits from forming. While Show Full Answer

Vyndamax (tafamidis) works by attaching to TTR proteins and preventing them from forming amyloid fibrils. It's specifically FDA-approved to treat amyloidosis-related heart disease and heart failure. The medication helps stabilize the transthyretin protein, which can help prevent harmful amyloid deposits from forming. While taking Vyndamax, it's important to watch for potential side effects. Seek immediate medical attention if you experience:

- Difficulty swallowing
- Hives or itchy skin rashes
- Chest tightness
- Rapid heartbeat

These could indicate an allergic reaction to the medication.

July 10, 2025

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