Food for thought....I am on VYNDAMAX, I am going to see the heart Dr. In October and I will ask him about any other meds I can take. I have WT ATTRCM stage 2 as told stage 2 is 44 months to live. Average life span after being diagnosed is 7.5 years. I am not ready to give up this life, just wish it were a better life. I always have a lot of question for my Dr. I read everything I can about this death sentence that we have. I try to be I formed.
Hope YOU have a good day.

And I want to thank everyone for the hugs

Hi All, I was on Vyndaqel and switched to Attruby on 01/01/2026, I am also on Amvuttra and am due for my second shot next week. I just received orders for labs so should have some clinical ideas in a few weeks. I have ATTR-CM and have no noticeable side effects from the meds. My main complaints are shortness of breath and increased arthritis pain. I’m 85 and still cranking along.😋

Great question to ask all of the doctors who have funding or had funding for studies from Pfizer. There is a clear bias in favor of Vyndamax. The claim is that "they don't know which has greater efficacy". The cardiologists base it on the current lack of any Attruby vs Vyndamax one-on-one direct comparison.

Hello Flora, Donnie here from Scandia Mn. I also have wild type amyloidosis. Its good your on Vyndamax , that could be your game changer. I try and stay active as much as possible, still working in retirement driving school bus. Im going on 5 yrs after being diagnosed and am feeling pretty good. Its my hope that the drug in trials can work to reversethis disease. Im not going to let it beat me, Do stay healthy as best you can and be positive. I wish you the best of luck.

my doc just switched me from Vindamax to Attruby. no side effects after 2 days. I have Hattr.