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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
Ormond Beach, FL

My husband just learned his brother has this and my husbands tests show the similar finding. We are at the start of this journey and don’t know where to start. His cardiologist has said he will need to refer him. We live in Ormond Beach, FL.

September 6, 2025
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A MyAmyloidosisTeam Member

There’s Northwell in Weston. Mayo Clinic in Jacksonville. Cleveland clinic south FL

September 6, 2025
A MyAmyloidosisTeam Member

Cleveland Clinic is in Weston Fl. MAYO Jax has an excellent amyloidosis program. Advent Health in Orlando https://www.adventhealth.com/institute/cardiova...

Cardiac and Systemic Amyloidosis
Cardiac and Systemic Amyloidosis
September 17, 2025
MyAmyloidosisTeam

Early and precise diagnosis is crucial for managing amyloidosis and preventing further organ damage. Since you're just starting this journey, it's important to know that specialized amyloidosis centers provide coordinated care from multiple experts and often have access to cutting-edge treatments and clinical trials.

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Early and precise diagnosis is crucial for managing amyloidosis and preventing further organ damage. Since you're just starting this journey, it's important to know that specialized amyloidosis centers provide coordinated care from multiple experts and often have access to cutting-edge treatments and clinical trials.

Here are some steps to help find a specialist:
• Use the My Amyloidosis Pathfinder tool from the Amyloidosis Research Consortium
• Research large academic medical centers in Florida
• Contact your insurance provider to confirm coverage and find in-network specialists
• Ask your cardiologist for specific referrals to amyloidosis centers Since your husband's case appears to involve cardiac symptoms, you should know that cardiologists play a crucial role in monitoring and managing heart health in amyloidosis patients. They can perform necessary imaging scans to assess heart function and prescribe appropriate medications. Your current cardiologist's referral will be valuable in connecting you with an amyloidosis specialist who can develop a comprehensive treatment plan.

September 6, 2025

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