Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people whoโ€™ve been there
  • People who understand what youโ€™re going through
Sign Up Log In
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 16, 2025
 · 
Be the first to react
A MyAmyloidosisTeam Member

Shirley do you have ATTR amyloidosis? You have mentioned that you have AL. Treatments for these two types of amyloidosis are entirely different!

September 16, 2025
A MyAmyloidosisTeam Member

Vyndamax IS NOT a treatment for AL amyloidosis!

September 16, 2025
A MyAmyloidosisTeam Member

My main problem is lack of energy ๐Ÿ˜’

September 16, 2025
A MyAmyloidosisTeam Member

I was told the medication that is used for ATTR cannot to used for AL,that's why they have to know which type to treat.

September 17, 2025
A MyAmyloidosisTeam Member

I think Vyndemax helps with a lot of the symptoms.

September 16, 2025

Related Questions

View All
A MyAmyloidosisTeam Member asked a question ๐Ÿ’ญ