Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can I get some of these articles in printed form. My family don't believe I have Amyloidosis even though my care team does.

A MyAmyloidosisTeam Member asked a question 💭
Dover, NJ
June 21
 · 
Reactions
A MyAmyloidosisTeam Member

Hi @A MyAmyloidosisTeam Member happy to explain how you can share MyAmyloidosisTeam articles with your loved ones.

1) If you're accessing our articles on a desktop and your computer is set up to a printer, you can often print directly from the browser by selecting CMD or CTRL followed by P

2) You can share each article digitally too. Scroll to the bottom of the article and you'll see multiple icons to share. The far left icon allows you to copy the article URL, the envelope icon let's you email the article to anyone, the last two icons allow you to share the article on Facebook or X

I hope this information was helpful. Please let me know if you have any follow up questions.

June 23
MyAmyloidosisTeam

It can be really tough when the people closest to you struggle to understand what you're going through — you're definitely not alone in that experience. The good news is there are some great free resources available that you can print or share with your family.

The Amyloidosis Foundation website offers a range of free Show Full Answer

It can be really tough when the people closest to you struggle to understand what you're going through — you're definitely not alone in that experience. The good news is there are some great free resources available that you can print or share with your family.

The Amyloidosis Foundation website offers a range of free downloadable materials, including:

- Brochures explaining amyloidosis
- Webinar recordings
- Informational videos

These are written in plain language and can be a great starting point for helping family members understand the condition. When talking to family, it can also help to keep things simple and relatable. A few tips that others have found useful:

- Share brief, concrete examples of how amyloidosis affects your daily life
- Let them know when you're experiencing pain or fatigue
- Be open about the kind of support you need
- Keep them updated on your treatments and how they affect you

Sometimes hearing it directly from your care team can also make a difference — consider inviting a trusted family member to your next appointment.

June 21

Related Questions

View All

Where can I find an amyloidosis team at one Institution?

A MyAmyloidosisTeam Member asked a question 💭
New York, NY
June 21

Genetic Testing and Family Counseling for hATTR Amyloidosis
Is There a Link Between Amyloidosis and Dementia?
Can You Get Disability Benefits for Amyloidosis? What To Know