I was diagnosed December 2022. I got treatment at Dana Farber in Boston. I think I was stage 3 a when diagnosed. I’ve been in remission for about two years. I just stoped the Clinical Trial I was on. Except for feeling tired by 2-3 in the afternoon, I feel like I’ve never been sick. Thank you Dana Farber. I don’t dwell on it but wonder if it will come back. My Oncologist said they will monitor me closely and there are even better medications if that were to happen.
Yes, it's common for AL amyloidosis to return after remission. While achieving remission is a significant milestone, the condition typically requires ongoing monitoring since relapses can occur. The good news is that when relapse happens, doctors can often treat it successfully using either the same medications that worked Show Full Answer