My shortness of breath has really affected my everyday life as I'm used to being a fairly active 77 year old. Being tired is another thing. We got back from an 8 hour road trip and that night I slept 11 hours!!!
I'm trying to stay a positive person who likes to joke, but some days are hard. Being on this site, knowing there are other people who have amyloidosis and the same symptoms as me and how they deal with them, really helps!

Thank GOD nothing changed in my daily life. Life as usual, but at a slower pace and slight increase in resting time.

Honestly, I don't feel any different from the day they told me.. to this day .

You can stop the emails yourself. Go to top page blue bar with MyAmyloidosisTeam image. Click on the two white bars. Then choose EMAIL Settings. Then, click each of the empty boxes. It will change the YES to NO. This should adjust the amount of emails you get. Click all that you want to stop. Best wishes.

We both need to remember that was great to be able to do 5, every day and talk or joke with others along the way. Then we couldn't walk and talk at the same time in order to save our breath if we hoped to get back to our starting point. Yes Keith, its crap, but I'm going to have a raspberry donut and say "hang in there dude."