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A MyAmyloidosisTeam Member asked a question 💭
Saint Louis, MO
November 19, 2025
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A MyAmyloidosisTeam Member

You have to trust your doctor....and read everything you  can about this disease. 

Yahoo Mail: Search, Organize, Conquer

November 20, 2025
A MyAmyloidosisTeam Member

I would imagine some kind of biopsy. Although I’m sure that won’t change your treatment so why go through it.

November 19, 2025
A MyAmyloidosisTeam Member

Hi Beverly
Mine personally has been carpal tunnel (although I've had it since I was 20, more evident now), You tingling and limbs if you haven't had mine initial started with right knee pain on down to the foot about 3-4 yrs ago, now all 4 limbs, fingers and toes. Cooling of right tricep, forearm area.

Thirdly as breakdown above says, unintentional weight loss. For years normally try to sleep with pillar between my leg she keeps spine straight. Over the last year or two so like knee on knee pain due to weight loss. Although I think I've successfully put on about 5 or 10 more pounds 😐 😕 Good and bad at our age 😆😆. Just my actual "diet" ie The food I put in my body. 4 - 6 fruits and veggies daily and my own personal stretch and the flexibility routine.

Hope some of that helped

November 19, 2025
A MyAmyloidosisTeam Member

I should add my husband’s has cardiac amyloidosis.

November 19, 2025
A MyAmyloidosisTeam Member

My husband has joint pain but it’s from RA. His biggest problem is really exhausted all the time and he has no feeling in his feet and lower legs, some in his hands from neuropathy. He is doing physical therapy and occupational therapy.

November 19, 2025

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