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A MyAmyloidosisTeam Member asked a question 💭
Garfield, AR
December 10, 2025
 · 
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A MyAmyloidosisTeam Member

My Cybor-D treatment was very effective. The Dr planned on a 6 month treatment plan but my numbers (amyloid in the blood stream, not amyloid already deposited) were greatly reduced to nearly nothing and treatment stopped at 3 months.
Recovery took a while. I didn't go bald but I had a great deal of hair loss. It did come back. It took a while for the extreme neuropathy to resolve. They do have good drugs for that. ALA,alpha lipoic acid, also helps heal the nerves. In the end, I think of treatment as a pause - buys time. Time to re-evalute what you think is important.

December 22, 2025
A MyAmyloidosisTeam Member

One thing is for sure the fatigue. But my wife helps me alot and I have friends I can call on. Stay positive.

December 14, 2025
A MyAmyloidosisTeam Member

Artful and thoughtful response. Bravo

December 23, 2025
A MyAmyloidosisTeam Member

We can only go by, what we’ve experienced so far. Tomorrow he will have his 6th “spa treatment”. Energy level is so so. Still dealing with diarrhea at least 2 days after. He has started to gain back some lost pounds. So we’ll wait and see.

December 10, 2025

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