Does anyone have localized AL amyloidosis in their legs? What treatment plans have worked?
Localized AL amyloidosis is quite rare, affecting only about 7-12% of all amyloidosis cases. While it can develop anywhere in the body, the most commonly affected areas are:
* Genitourinary tract (bladder and urethra)
* Skin
* Upper Show Full Answer
Does anyone have localized AL amyloidosis in their legs? What treatment plans have worked?
Localized AL amyloidosis is quite rare, affecting only about 7-12% of all amyloidosis cases. While it can develop anywhere in the body, the most commonly affected areas are:
* Genitourinary tract (bladder and urethra)
* Skin
* Upper airways and lungs
* Gastrointestinal tract
Localized amyloidosis in the legs specifically isn't mentioned as a common site, though skin involvement can occur in various locations.
About half to three-quarters of people with localized amyloidosis need treatment, typically only if experiencing symptoms. The good news is that more than 70% of people feel better after their first treatment. Common treatment approaches include:
* Surgery - Used in 60-80% of cases to remove affected tissue. This can sometimes completely cure localized amyloidosis if all amyloid deposits and abnormal plasma cells are removed
* Radiation therapy - An option when surgery isn't possible. It kills abnormal plasma cells and reduces amyloid buildup
The prognosis for localized amyloidosis is generally very good, with people typically living as long as the general population. Connecting with others on MyAmyloidosisTeam who may have similar experiences could provide valuable insights into their specific treatment journeys.
January 9
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