Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
January 9
 · 
Reactions
A MyAmyloidosisTeam Member

Be strong brother ,Jesus always with you

January 12
A MyAmyloidosisTeam Member

I'm taking some medicine but the odds are against me cause I have leukemia cml to and I stopped taking medicine it been 4 months have not taking anything for my leukemia they took out 4.2 liters of fluids in one lung had edema on my legs legs to to many side effects

January 12
A MyAmyloidosisTeam Member

Hematologist should be your first step

January 12
MyAmyloidosisTeam

Which specialist is best for diagnosing amyloidosis?

Your primary care physician is usually the first step. They can recognize early warning signs and refer you to the right specialist based on your symptoms.

The specialist you'll see depends on which symptoms you're experiencing:

- Hematologist - Often leads diagnosis Show Full Answer

Which specialist is best for diagnosing amyloidosis?

Your primary care physician is usually the first step. They can recognize early warning signs and refer you to the right specialist based on your symptoms.

The specialist you'll see depends on which symptoms you're experiencing:

- Hematologist - Often leads diagnosis for AL amyloidosis, since it involves abnormal plasma cells in your blood
- Cardiologist - If you have heart-related symptoms like shortness of breath or irregular heartbeat
- Neurologist - If you're experiencing nerve problems like numbness, tingling, or weakness

Many people benefit from visiting a specialized amyloidosis center. These centers have experience with rare forms of amyloidosis and offer coordinated care from multiple specialists working together. They often have access to the latest diagnostic tools and treatments.

To find an amyloidosis specialist, you can use the My Amyloidosis Pathfinder tool from the Amyloidosis Research Consortium, ask your current doctor for referrals, or research large academic medical centers in your area.

January 9

Related Questions

View All