So far, no. I am on BUMEX 1mg 1-2x per day. It's been working well for me to control water retention.
January 29
Has anyone else experienced jugular vein distention (JVD) related to amyloidosis?
A bulge in your jugular vein can indeed be related to fluid buildup and heart involvement from amyloidosis. When amyloid proteins build up in the heart, they make the heart walls thick and stiff. This stiffness makes it harder for your heart Show Full Answer
Has anyone else experienced jugular vein distention (JVD) related to amyloidosis?
A bulge in your jugular vein can indeed be related to fluid buildup and heart involvement from amyloidosis. When amyloid proteins build up in the heart, they make the heart walls thick and stiff. This stiffness makes it harder for your heart to fill with and pump blood properly.
When the heart's chambers become stiff, pressure builds up inside them. This increased pressure can push backward into the veins, including the jugular vein in your neck, causing it to bulge or become more visible.
This is often seen alongside other signs of cardiac amyloidosis, such as:
- Swelling in the ankles, legs, or abdomen
- Shortness of breath
- Fatigue
- Enlarged atria (upper heart chambers)
Your doctor is right to connect this to possible fluid buildup around your heart. JVD is a physical sign that your healthcare team can monitor to see how well your heart is managing fluid and pressure.
If you're noticing this symptom, it's important to keep your medical team informed about any other changes you're experiencing, especially breathing difficulties or increased swelling elsewhere.
January 28
Join
Your Privacy Choices
