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February 6
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What’s the Difference Between hATTR and Wild-Type ATTR? Read Article...
A MyAmyloidosisTeam Member

Age is just a number. I was 83 when diagnosed with AL amyloidosis. Was fortunate (???) to be in excellent physical condition at that point. Kidney doc was reluctant to do biopsy on my kidneys until she met me. Although with some heart and kidney damage, I am doing fine at age 87--am much weaker but have adjusted.
Unfortunately , doctors tend to broad brush folks in their 80s to be un-treatable. I had difficulty getting doctors to initially identify me with amyloidosis.

February 6
A MyAmyloidosisTeam Member

Jim has wild type and he has lots of falls. We have now made our house more wheelchair friendly along with lots of equipment in the bedroom. Sometimes I think it is amazing how he keeps trying.

March 24
A MyAmyloidosisTeam Member

Are they doimg any good? I am trying to get in there now.

March 20
A MyAmyloidosisTeam Member

We went to Mayo Clinic in Rochester, MN.

March 14
A MyAmyloidosisTeam Member

Vern, one cardiologist didn’t want to bother with my husband because at the time he was 85, he said go home and talk to your local Dr. We are from a small community and they know nothing about Amyloidosis. We got connected with a Cardiologist specializing in Cardiac Amyloidosis. She is great and Jim feels the meds are helping. It’s kind of a one day at a time. The main thing is don’t give up and find a new Dr if you don’t thing the one you are with is helping.
Wishing all of you the best. ❤️

March 14

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