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Hope you were able to return to your "old fashions". I prefer red wine but went through a spell with my treatment where I couldn't tolerate it. I am happy to report the New York steaks and Red are back on the menu.
I have been taking 500 mg of Diflunisal once per day for localized ATTR. The first day I took it I became ill for 2 days. Turns out, the (whiskey)Old Fashion I had for lunch did not mix well with the Diflunisal though I was careful to take it hours later. I have never had a problem since but always take it together with Famotodine (an antacid). Diflunisal 250 mg twice per day was prescribed, not the 500 once per day that I take, but I can't get that dosage due to supply issues, so I am told.
What feedback are you looking for about diflunisal?
Diflunisal is a nonsteroidal anti-inflammatory drug (NSAID) that can help stabilize TTR protein, similar to how tafamidis works. It's sometimes used off-label for amyloidosis, meaning it's not officially FDA-approved for this condition, but doctors may prescribe it based Show Full Answer
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