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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have 2 LAD stents due to 2 myocardial infractions; 80+% blockage. The symptoms of those mimic the ATTR-CM symptoms. How does one tell .

A MyAmyloidosisTeam Member asked a question 💭
Dayton, OH
March 27
 · 
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A MyAmyloidosisTeam Member

Hi Guy…I’m sorry to hear that you are experiencing symptoms similar to those associated with ATTR-Cm. As mentioned in the ‘amyloidosis team’ reply there are a number of diagnostic tests that will help determine if you have amyloidosis ie: echocardiogram; blood tests; heart biopsy etc. In my case, I had all of those tests and others over a period of 7-8 months which proved that I had ATTR-CM amyloidosis…wild type. That was in 2024 at which time I began treatment with a daily dose of Vyndamax (61 mg). I will turn 85 this year.

While my lifestyle has changed dramatically since diagnosis, ie: extreme tiredness and weakness as well as weight loss (40lbs), I have accepted the new status quo and endeavour to stay positive and live as healthy as I can….exercise,diet,adequate sleep,social activities and luckily great family support!

In your case I would seek out a Cardiologist who can prescribe the various cardiac tests that will confirm or not that you have this disease. Hopefully not!!

All the best……John.

March 27
A MyAmyloidosisTeam Member

Hi..I agree with John .Dx

March 28
MyAmyloidosisTeam

How can you tell the difference between heart symptoms from stents and ATTR-CM?

It can be challenging to distinguish between symptoms from coronary artery disease (which led to your stents) and ATTR-CM since both can cause shortness of breath and fatigue. However, there are specific clues that may point to ATTR-CM.

Show Full Answer

How can you tell the difference between heart symptoms from stents and ATTR-CM?

It can be challenging to distinguish between symptoms from coronary artery disease (which led to your stents) and ATTR-CM since both can cause shortness of breath and fatigue. However, there are specific clues that may point to ATTR-CM.

Doctors look for a pattern of symptoms beyond typical heart failure signs. These additional indicators can include:

* A history of carpal tunnel syndrome
* Back or spine problems (especially spinal stenosis)
* Swelling in the legs or enlarged neck veins (signs of right-sided heart failure)
* Irregular heartbeat like atrial fibrillation without a clear cause
* Numbness or tingling in hands and feet

If you're still experiencing symptoms despite having stents placed, or if your symptoms don't improve with standard heart failure medications, your doctor may consider testing for ATTR-CM.

Diagnostic tests can help clarify what's happening. An echocardiogram can show if your heart walls are unusually thick or stiff. A special bone scan (scintigraphy) or cardiac MRI can detect amyloid buildup in the heart. Blood tests showing certain markers of heart damage can also provide clues.

Since both conditions can coexist, it's important to discuss any ongoing or new symptoms with your cardiologist so they can determine if additional testing for ATTR-CM is needed.

March 27

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