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A MyAmyloidosisTeam Member asked a question 💭
May 30
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A MyAmyloidosisTeam Member

Yes and I used to do the 24 hour collection .. Now just the random and into the small bottle .. Even though in full remission now as they say for 13 years . I still have the occasional days when urine is a little frothy . never monitored what I was eating just before but it wold be a good idea . Also The full blood tests show the negative no light chains . The kidneys did have the amyloid in them but the treatment at the tine stopped the progression and the graph shown they have virtually stayed the same after the treatment . A little up and down but consistent . Yes a marker and ask your doctor .. The kidney biopsy found my amyloid and then the tests for type and AL and also in the heart . I get my next results tomorrow ad after 2 months overseas with a diet nothing like at home we shall see if there is any difference .. I feel great so we see.

May 30
MyAmyloidosisTeam

Foamy or frothy urine can be a sign that amyloidosis is affecting the kidneys. This happens when kidney damage causes protein to leak into the urine — a condition called proteinuria. Proteinuria is an important marker of how the condition is progressing. If left untreated, it can lead to symptoms such as:

- Foamy or bubbly Show Full Answer

Foamy or frothy urine can be a sign that amyloidosis is affecting the kidneys. This happens when kidney damage causes protein to leak into the urine — a condition called proteinuria. Proteinuria is an important marker of how the condition is progressing. If left untreated, it can lead to symptoms such as:

- Foamy or bubbly urine
- A puffy face
- Swollen belly, feet, and ankles
- Nausea
- Muscle cramps

It's worth noting that foamy urine alone doesn't automatically point to amyloidosis — but if it's happening regularly or alongside other symptoms like swelling or fatigue, it's definitely worth bringing up with your doctor. Urine tests that check for protein levels are commonly used to help monitor how amyloidosis may be affecting your kidneys. Catching kidney involvement early is really important — it can help prevent things from progressing to more serious kidney damage down the line.

Don't wait too long to flag this with your care team — they'll likely want to run some tests to get a clearer picture of what's going on.

May 30

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