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A MyAmyloidosisTeam Member asked a question πŸ’­
Winston Salem, NC
June 3
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A MyAmyloidosisTeam Member

I did not have stem cell. I have pulmonary Amyloidosis and I did chemo for three years. Have been in remission since 2018.
I go to Mayo in Rochester Minnesota. Although I did my chemo back home in Wisconsin.
I am still here..

June 5
MyAmyloidosisTeam

That's a great question to want to verify! The figure that appears in research is slightly different β€” about 1 in 3 people (roughly 33%) who undergo a stem cell transplant achieve complete remission. So the 35% figure is in the right ballpark, but it specifically applies to those who receive a stem cell transplant, not all Show Full Answer

That's a great question to want to verify! The figure that appears in research is slightly different β€” about 1 in 3 people (roughly 33%) who undergo a stem cell transplant achieve complete remission. So the 35% figure is in the right ballpark, but it specifically applies to those who receive a stem cell transplant, not all AL amyloidosis patients overall. There are also some important things to keep in mind about remission:

- Complete remission means doctors can find no remaining signs of disease
- Partial remission means some, but not all, signs of disease go away
- Remission doesn't always last permanently β€” the disease can relapse
- If a relapse happens, treatment can be restarted or adjusted

The likelihood of remission also depends on factors like how early the diagnosis was made, which treatments are used, and individual health factors like heart involvement.

Speaking with your care team about your specific situation is the best way to understand what remission might look like for you personally.

June 3
A MyAmyloidosisTeam Member

Correction September 2019. !

June 6

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