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A MyAmyloidosisTeam Member asked a question πŸ’­
Alamogordo, NM

Hi everyone! Man I don't know what I would do without all of you. I started taking VYNDAMAX yesterday. I know it says no known side effects and I really wasn't worried about that anyway but I am feeling "off". Kinda of dizzy, light headedness today. Could this just be my body getting used to the medication? Has anyone else had this happen this medication?

June 5
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A MyAmyloidosisTeam Member

If you are like me, you should start feeling better in a few weeks. But....everyone is different. Best of luck!

June 5
A MyAmyloidosisTeam Member

Yes, I having been living with the dizziness of this disease so I know that dizziness. This is different and a very dramatic change. I'm not even sure how to explain it. I feel heavy. Even when I am sitting down. And just off. All I can think of is it must be the meds. I will try it again tonight. I'm just curious if anyone else has felt this after taking it. Thank you so much for the reply.

June 5
MyAmyloidosisTeam

Starting a new medication and feeling "off" is understandably unsettling β€” especially when dizziness and lightheadedness show up right away. These sensations are actually something many people with amyloidosis experience, and there are a few possible reasons they could be happening.

Dizziness and lightheadedness in Show Full Answer

Starting a new medication and feeling "off" is understandably unsettling β€” especially when dizziness and lightheadedness show up right away. These sensations are actually something many people with amyloidosis experience, and there are a few possible reasons they could be happening.

Dizziness and lightheadedness in amyloidosis can be linked to:

- Orthostatic hypotension β€” a drop in blood pressure when standing up, which amyloidosis can contribute to by affecting the nerves that regulate blood pressure
- Dehydration β€” even mild dehydration can trigger these feelings
- Adjusting to a new medication β€” the body sometimes needs time to adapt A MyAmyloidosisTeam member shared that staying well hydrated and working closely with their doctor helped them manage dizziness much more effectively.

It's really worth letting your doctor know what you're experiencing β€” especially when it started and whether it happens more when standing up or at certain times of day. That detail helps them figure out the best next step.

Don't tough it out alone β€” a quick call to your care team can go a long way! πŸ’™

June 5

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A MyAmyloidosisTeam Member asked a question πŸ’­
Redwood City, CA

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