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In 2020 I lost maybe 20 lbs without trying and body hair too.
I was not diagnosed until sometime in the summer of 2022.

July 15
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A MyAmyloidosisTeam Member

It’s something that you should mention to the dr. Especially the weight loss. I don’t know what treatment you’re on but sometimes that could be it

July 17
A MyAmyloidosisTeam Member

my son who was very muscular lost all muscle and weight went from 150 to 120. you need a cardiologist who specializes in amyloidosis. his dr. was affiliated with university of chicago hospital.

July 19
A MyAmyloidosisTeam Member

I'm not on any treatment, nobody knows anything up here. I had to educate my Dr. with what I knew.
And when I lived in Southern California in the Los Angeles area, they never treated me for anything they just tested me looked at my eyes, check my blood, did an MRI of my brain. And all the UCLA eye doctors never told me a damn thing. I didn't even know how could it could affect the rest of my body until one doctor just happened to say oh it's not an eyeball thing it can affect your whole body. And then I move to Northern California.

July 17 (edited)

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