Living with AL amyloidosis and needing dialysis is something others in the community have navigated too. AL amyloidosis affects the kidneys in about 65% of cases, which can eventually lead to kidney failure — making dialysis a reality for some.
When kidneys are significantly impacted, dialysis helps filter waste from the Show Full Answer
Living with AL amyloidosis and needing dialysis is something others in the community have navigated too. AL amyloidosis affects the kidneys in about 65% of cases, which can eventually lead to kidney failure — making dialysis a reality for some.
When kidneys are significantly impacted, dialysis helps filter waste from the blood. However, long-term dialysis can bring its own amyloidosis-related complications, since dialysis isn't great at removing a protein called beta-2 microglobulin, which can build up over time. Some symptoms to be aware of with long-term dialysis include:
- Joint and shoulder pain — especially during or after dialysis sessions
- Carpal tunnel syndrome — pain, numbness, or weakness in the hands and wrists
- Bone cysts — which can weaken bones and increase fracture risk
- Neck or back pain — from amyloid deposits in the spine
- Gastrointestinal symptoms — less common, but possible with extended dialysis use
It's worth discussing these symptoms openly with a healthcare provider, as treatments are available to help manage them. A kidney transplant is also an option some people with AL amyloidosis explore when kidney failure occurs.
July 28
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