With wild-type ATTR amyloidosis, the condition primarily affects the heart, though it can also impact nerves and soft tissues. Since wild-type amyloidosis mainly targets the heart, the core specialist team typically revolves around cardiac care.
That said, amyloidosis can affect the autonomic nervous system in some cases Show Full Answer
With wild-type ATTR amyloidosis, the condition primarily affects the heart, though it can also impact nerves and soft tissues. Since wild-type amyloidosis mainly targets the heart, the core specialist team typically revolves around cardiac care.
That said, amyloidosis can affect the autonomic nervous system in some cases, which is the system that controls involuntary functions like heart rate, blood pressure, and digestion. This is more commonly associated with hereditary ATTR amyloidosis, but it's worth raising any autonomic symptoms with your care team.
Some symptoms that might prompt a conversation with your doctor include:
- Dizziness or lightheadedness when standing
- Irregular heart rate
- Digestive issues
- Unexplained blood pressure changes Since amyloidosis is complex and can involve multiple organ systems, a specialist in autonomic nervous system issues could potentially be a helpful addition to your care team — but it's best to discuss this with your primary amyloidosis specialist first. They can assess your specific symptoms and determine whether a referral makes sense for your situation.
Seeking care at a specialized amyloidosis center is also worth considering, as they coordinate care across multiple specialists and have experience with even the rarest presentations of the condition.
August 1
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