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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have ATTR-CM. I have normal BP but device shows arrythmia. Is that a concern. I have had two ablations.

A MyAmyloidosisTeam Member asked a question 💭
Honolulu, HI

I have most ATTR-CM symptoms, incl. carpal tunnel, spinal stenosis, gut discomfort, and cardiomyopathy.

September 10
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A MyAmyloidosisTeam Member

Gary,
ask your Cardiologist to recommend a well qualified counselor ( or Clergy to work with you on your inner man.
U need to be there for ur loved ones.
I frequently ask my higher power to take me because day after day is “head to toe” misery But here i am.🌈
i’ve had carpal tunnel 5 years ago but i couldn’t tell you when the wild Amyloidosis really started- It’s such an insidious disease…….
Anyway………Best Wishes
Larry.

3 days ago
A MyAmyloidosisTeam Member

I am taking medication for my ATTR-CM. I also have an appointment at Stanford’s amyloidosis center. I have to admit the return of arrythmia has me very discouraged and ready to just give up after five years of constant pain.

September 10
MyAmyloidosisTeam

Yes, arrhythmia detected by a device is definitely worth taking seriously with ATTR-CM, even with normal blood pressure. Normal BP doesn't rule out heart rhythm problems related to the condition. In ATTR-CM, arrhythmias can occur because amyloid deposits interfere with the heart's electrical system. The most common type is Show Full Answer

Yes, arrhythmia detected by a device is definitely worth taking seriously with ATTR-CM, even with normal blood pressure. Normal BP doesn't rule out heart rhythm problems related to the condition. In ATTR-CM, arrhythmias can occur because amyloid deposits interfere with the heart's electrical system. The most common type is atrial fibrillation (AFib), which affects between 40% and 60% of people at the time of their ATTR-CM diagnosis.

Untreated arrhythmia can raise the risk of stroke, so it's important not to ignore device alerts. Given that two ablations have already been performed, the care team needs to know about any new or returning rhythm issues right away.

Symptoms to watch for alongside arrhythmia include:
- Heart palpitations or a fluttering feeling in the chest
- Shortness of breath
- Dizziness or fainting
- Fatigue
- Chest pain With the combination of symptoms already present — carpal tunnel, spinal stenosis, gut discomfort, and cardiomyopathy — the care team has important context to work with. Reaching out to a cardiologist promptly about the device reading is strongly recommended, especially given the ablation history.

September 10

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