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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I’m in my late 50’s and have recently been diagnosed with wild type amyloid. I’m looking for anyone with a similar situation.

A MyAmyloidosisTeam Member asked a question 💭
1 day ago
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A MyAmyloidosisTeam Member

Mike
Welcome! I have hereditary ATTR CM and was diagnosed at 60. My initial diagnosis came right after my 60th birthday during an emergency room visit for elevated NT-proBNP and they told me I had congestive heart failure. What a shock! I had supported my mom through a a CHF diagnosis at age 90 one year earlier. I was honestly struggling to process what they told me. As I travelled the journey I was later diagnosed with wild type. The doctor encouraged DNA testing which came back and revealed that my condition is hereditary. I’ve since learned my maternal aunt had this condition as well. I was placed on Vyndamax and also take Eliquis. I’m currently in cardiac rehabilitation and doing much better. BTW my journey started Dec 1 2025.

Our diagnosis at this time has a much better prognosis than just a few years back as studies have introduced some really great drugs to stabilize and silence the disjointed protein. Depleter drugs are in development.

You’ve come to the right place to learn more, get advice as well as support. Welcome to the team and let us know how we can help you on this journey. Godspeed in your journey!

Greg

1 day ago
MyAmyloidosisTeam

Being diagnosed with wild-type ATTR amyloidosis in your late 50s is relatively uncommon, as it's most often diagnosed in men aged 60 and older, with the average diagnosis age around 75. So you're actually on the earlier end of the spectrum — which could mean catching it sooner than most!

There are many members of Show Full Answer

Being diagnosed with wild-type ATTR amyloidosis in your late 50s is relatively uncommon, as it's most often diagnosed in men aged 60 and older, with the average diagnosis age around 75. So you're actually on the earlier end of the spectrum — which could mean catching it sooner than most!

There are many members of MyAmyloidosisTeam who share their experiences with wild-type amyloidosis. While your age at diagnosis may be less typical, you're definitely not alone in navigating this condition. Here are some things worth knowing about wild-type ATTR amyloidosis that may be helpful as you connect with others in a similar situation:

- It primarily affects the heart, causing the heart walls to become stiff and thick
- Early signs like carpal tunnel syndrome or a torn biceps tendon can appear years before heart symptoms
- It tends to progress slowly compared to other types of amyloidosis
- Newer treatments are available that can help slow progression and improve quality of life

Talking with your care team about your specific situation is always a great first step, especially since being diagnosed earlier may open up more treatment options.

1 day ago

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