Tegsedi and amyloidosis | MyAmyloidosisTeam

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Top 2 Search Results for "Tegsedi"

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Anyone On Vyndamax 61 Mg?
A MyAmyloidosisTeam Member asked a question 💭

How long? What was the benchmark? Have you been retested to see your effectiveness of this drug?

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A MyAmyloidosisTeam Member

I was find but it caused liver problems and we told to stop

Tafamidis Therapy Prophylactically?
A MyAmyloidosisTeam Member asked a question 💭

Recent diagnosis from bilateral CTS. Mayo says ATTR, Cardiologist suspects wild type. Kidney, liver cardiac tests normal. Anyone receiving tafamidis therapy to prevent further progression of disease. In my option, seems tragic that a patient has to progress to some level of cardiac failure before starting treatment if Vindamax or other tafamidis can slow progression.

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A MyAmyloidosisTeam Member

I have PN as well. Entire left side, and now moving to my face this morning. My son got his meds in 3 days. It will be a week this Tuesday for approval of grant. How do you pay for med?