Vyndaqel and amyloidosis | MyAmyloidosisTeam

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Top 10 Search Results for "Vyndaqel"

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Top 5 searches:
HELP! Medicare CIGNA Insurance
A MyAmyloidosisTeam Member asked a question 💭

I’ve been on Vyndamax 3 years. They refuse to refill Rx. They want me to go on Vyndaquel which is 4 PILLS A DAY.

I’ve got a Board Doctor Director at St. Joseph’s Hospital in Orange, CA.
He said Insurance is bad all about $.

Please give me any suggestions!

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A MyAmyloidosisTeam Member

This is also my understanding from my reading. Vyndamax and vyndaqel are the same drug in different forms. Regarding the other issue, wild type is a type of Attr.

Gary

Can Anyone Let Me Know When Vyndaqel Will Be Launched In India.
A MyAmyloidosisTeam Member asked a question 💭
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Tafamidis
A MyAmyloidosisTeam Member asked a question 💭

Anyone out there on tafamidis? Is insurance paying?

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A MyAmyloidosisTeam Member

TY

Apart From Possible Side Effects ,is Diflusinal As Good As Tafamadis To Stop Misfolding Of Amyloids For Attrwt
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

This was discussed yesterday at the big TTR meeting in Chicago. It is an excellent option if you are unable to afford Vyndamax or Vyndaqel. However, Diflunisal is an NSAID, which can be bad for… read more

Just Prescribed Vyndagel, Not Vyndamax, Is One Better Than The Other?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

My husband takes Vyndamax. Just started .

I Started Vyndaquel This Week. Has Anyone On This Drug Seen A Remission Of Symptoms?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

Yes Mary.

Vyndaqel
A MyAmyloidosisTeam Member asked a question 💭

Currently, I am in the early stages of wild type ATTR. What is your advice on this drug?

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A MyAmyloidosisTeam Member

it is important to exercise the legs because circulation is insufficient, more blood going to the legs than coming back. How to do that with the fatigue issue? I got an under the desk bike exerciser… read more

I've Been Subscribed Jardiance Along With My Vyndaquel. Is Anyone Else Using This Drug, And Have You Seen Results?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

I take Jardiance and Vyndamax. My cardiologist says it might help ejection fraction.

Amiodarone And Vyndamax?
A MyAmyloidosisTeam Member asked a question 💭

I have been taking vyndamax for about four weeks. I also have heart arrhythmias. The Dr suggested a low dose of amiodarone for the arrhythmia (200mg). Does anyone have any experience/suggestions with using this drug with vyndamax
Amiodarone side effects sound troublesome to me.

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A MyAmyloidosisTeam Member

I take Dofitilide for arrythmia, and will be starting Vyndaquel soon. My doctors said there would be no problem.

Is There A Difference Between Vandaqel And Vyndamax ?
A MyAmyloidosisTeam Member asked a question 💭
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A MyAmyloidosisTeam Member

No difference I take 61mg
New drug hopefully will get fda approval
My cardiologist is working on the trial and results