Thanks for getting back to me...I got a full body rash last summer from the sulfa antibiotic I was on. Now I get my antibiotic once a month through a nebulizer. I hope yours eases up.

Good luck Steve2. I'm praying for you and hope things improve soon. Keep us posted.

I was in “remission” for 12 months after my chemo and Stem Cell Transplant. I have just started “Lenalidomide” 10 mg; 21 day cycle on, 7 days off because my numbers are starting to go back up. Unfortunately, I’m having a reaction to this medicine and have rash/itching all over my body. I’m currently trying every-other-day on this cycle (#2) to see if that helps but so far, I’m still scratching. I think treatment is very individualized; no one size fits all.

That's good news. It's such a roller coaster. I thought the stem cell treatments really worked?...but glad to hear about the Revlimid! My numbers are still good but I'm supposed to stop treatment (Darzeleb) in Feb. I guess 2 years is enough!
good luck and happy holidays

My update: taking 10 mg Lenalidomide (Revlimid) every other day wasn’t working, so I am now on 15 mg every day. Last appointment the numbers were going in the right direction, so we’ll see at my next appointment in two weeks if it has continued. The rash is gone., I seem to be able to tolerate this med okay now. It was a horrible struggle for a few months to just stick with it and see if I could eventually tolerate it. We march on!