Yes, I have been on this journey for three years, and hopefully quite a few more

69 year old just diagnosed with wild type amyloidosis ... on vyndamax for a month now. Thank you Tufts Medical in Boston for figuring it all out.

Hope and pray for a cure. I think it may be just 4 years away if depleter drugs are approved by health authorities.

Yes i have wt ATTR-CM and heart failure. Six months of Vyndamax 61 MG and starting to notice a good difference in all my other symptoms. I’m an active 80 yr old male.
Recently had an Ablation to correct Afib/Aflutter and to create a new electrical path for the QRS pulse to flow to keep me in sinus rythym. The wave form seems a tiny bit wider than normal at times.
I still get tired by 4pm if I don’t have a nap. With a nap i am good until 11:00pm. Shortness of breath almost all gone except on high stairs.

I am now on Tafmidis at last the NHS has agreed to fund us with amyloidosis. I have been on it two months now so don't really know if it is doing me good, fingers crossed. Love to you all and God Bless. xx