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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAmyloidosisTeam Member asked a question 💭
Richboro, PA

I received this information on ni006, which shows signs of removing Attr amyloid from the system. Phase I was completed earlier this year.

“The drug is moving directly to Phase 3 studies
A phase 3 trial will begin by the end of the year/beginning 2024. The company who has acquired the drug and is running the phase 3 is Alexion.
Enrollment for the Phase 3 trial will be worldwide including the US. I recommend to contact alexion US or a local specialist in cardiac amyloidosis to identify a… read more

October 26, 2023
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Reactions
A MyAmyloidosisTeam Member

i am not eligible because o have sclerosis of the liver

October 29, 2023
A MyAmyloidosisTeam Member

Thanks for the information God Bless

October 29, 2023
A MyAmyloidosisTeam Member

There’s some hopeful treatments on the horizon. Prayers that they’re approved and affordable!

October 29, 2023
A MyAmyloidosisTeam Member

I will be looking at the study.

October 26, 2023
A MyAmyloidosisTeam Member

interesting. I think when someone sends a message they should tell what type of Amylodosis they have as they are very different.

October 26, 2023

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