Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 30, 2023
 · 
Reactions
A MyAmyloidosisTeam Member

Andre, Finally after 14 months my taste is finally coming back, not as good as before my somewhat improved, hope you do the same. Bill

April 23, 2024
A MyAmyloidosisTeam Member

Yes. And as a rather decent cook, it is hard to swallow food that is now just a texture or temperature event in the mouth. I thought at first it was COVID but now I think it is definitely related to the AMY.

January 6
A MyAmyloidosisTeam Member

Hi, I have been on Vyndamax for almost 5 years. I have never lost my sense of taste. Just thought I’d add that.

April 27, 2024
A MyAmyloidosisTeam Member

I have AL Amyloidosis and I lost my sense of taste for several months now and wondered too if anyone else is going through the same symptoms. Wish I had an answer but I’ll keep looking too.

March 25, 2024
A MyAmyloidosisTeam Member

Thanks for getting back to me, I will keep you informed if any changes.

January 7, 2024

Related Questions

View All
A MyAmyloidosisTeam Member asked a question 💭
Bangor, ME

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In