I Have The Wild Type Attr And Have Been On Vyndamax For 10 Months And I Have Lost My Sense Of Taste, Has Anyone Else Have This Problem. | MyAmyloidosisTeam

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I Have The Wild Type Attr And Have Been On Vyndamax For 10 Months And I Have Lost My Sense Of Taste, Has Anyone Else Have This Problem.
A MyAmyloidosisTeam Member asked a question 💭
posted December 30, 2023
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A MyAmyloidosisTeam Member

Andre, Finally after 14 months my taste is finally coming back, not as good as before my somewhat improved, hope you do the same. Bill

posted April 23
A MyAmyloidosisTeam Member

Hi, I have been on Vyndamax for almost 5 years. I have never lost my sense of taste. Just thought I’d add that.

posted April 27
A MyAmyloidosisTeam Member

I have AL Amyloidosis and I lost my sense of taste for several months now and wondered too if anyone else is going through the same symptoms. Wish I had an answer but I’ll keep looking too.

posted March 25
A MyAmyloidosisTeam Member

Thanks for getting back to me, I will keep you informed if any changes.

posted January 7
A MyAmyloidosisTeam Member

Hi William, I’ve been on Vyndamax since July 2019. It will be five years coming up this July 1924. I have never lost my sense of taste. I’m hoping that yours is simply temporary. Please keep us posted. Thanks, Jim Jones

posted January 7

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