Thank you for the information. Be well

My mother had a heart problem and I was told she had hATTR, her previous generation had a member with heart problems but who knows whether any had hATTR since not diagnosed at that time. My mother passed at 80 and I am 82 presently so the age difference is not a factor in my situation. Plavix is one factor that has helped me along with (Vyndamax) tafamidis.

My partner was diagnosed at the age of 39 with hATTR cm, no known family history.

Hi Tee, I also have hATTR Amyloidosis type T60a also called “Donegal Amy”. This type is very common to a small coastal area of Donegal from Rosses, Gweedore and Cloughaneely areas which has also travelled with the descendants and diaspora to UK, USA, Australia. My personal belief, and some medical reports from international Amy experts who visited our areas reckon it also may be connected to the shipwrecked sailors of the Spanish Armada back in 1588. Myself and some other Donegal based patients have formed a patient’s support group on Facebook called Amyloidosis Ireland. Our website has loads of info and can be viewed at Amy.ie
All the best, Paddy Doherty, Gweedore, Co. Donegal