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A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA
February 19, 2024
 · 
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A MyAmyloidosisTeam Member

I have 3 siblings and they all have hTTR . My brother had a heart transplant, My other brothers are on Vyndemax. I am on Onpattro. This disease is not a good one. Make sure you have a doctor who can help you💜🩷💜🩷

March 16, 2024
A MyAmyloidosisTeam Member

I think when my symptoms began I had cardiomyoathy ischemic probably around 60. Now 78 almost 79. Had pacemaker and defib implanted. Have CFH. Got vyndamax Friday 3/7/24.

March 8, 2024
A MyAmyloidosisTeam Member

All my siblings and I were diagnosed with hTTR amyloid in our 60s. But both my brother and I were misdiagnosed with high blood pressure and Afib for about 10 years.

March 4, 2024
A MyAmyloidosisTeam Member

Thank you,and yours as well.

February 22, 2024
A MyAmyloidosisTeam Member

Wish you and your family well Roxanna

February 22, 2024

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