Hello….Those Of You With Hattr. Did It Tend To Run In Your Families? And Was The Age Of Onset Younger Than 75? | MyAmyloidosisTeam

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Hello….Those Of You With Hattr. Did It Tend To Run In Your Families? And Was The Age Of Onset Younger Than 75?
A MyAmyloidosisTeam Member asked a question 💭
posted January 24
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A MyAmyloidosisTeam Member

I noted on ancestry.com my ancestors died from cardiomyopathy which was probably TTR. my mom passed at 93 with heart failure undiagnosed as TTR.

posted February 22
A MyAmyloidosisTeam Member

Thank you for sharing. Hope you are doing well.

posted January 29
A MyAmyloidosisTeam Member

Hi Edward,
I'm 65 and was caught early with limited damage to my heart and developing Polyneuropathy symptoms.
I have 2 sisters, 2 and 7 years younger, 1 with heart and the other with PN issues.
I have 2 other sisters, 1 just a year younger than me, another 13 years younger with no symptoms. We all tested positive for gene mutation.
We have 3 sets of cousins with various symptoms, as well.

posted January 28
A MyAmyloidosisTeam Member

Thank you. That’s a late onset. Wish you well !

posted January 27
A MyAmyloidosisTeam Member

The hereditary ATTR in my family is not well documented. I know the past few generations died of heart problems. My mother departed at 81 with hereditary ATTR. I have been diagnosed at 81 but I am still hanging around. I suspect my walking every day, like my father, has delayed the onset until now of the diagnosis of hATTR. Just a theory but my doctor seems to think the same line of thought, that exercising delayed my need for the tamifidis (generic name).

posted January 27

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