I noted on ancestry.com my ancestors died from cardiomyopathy which was probably TTR. my mom passed at 93 with heart failure undiagnosed as TTR.
Thank you for sharing. Hope you are doing well.
Hi Edward,
I'm 65 and was caught early with limited damage to my heart and developing Polyneuropathy symptoms.
I have 2 sisters, 2 and 7 years younger, 1 with heart and the other with PN issues.
I have 2 other sisters, 1 just a year younger than me, another 13 years younger with no symptoms. We all tested positive for gene mutation.
We have 3 sets of cousins with various symptoms, as well.
Thank you. That’s a late onset. Wish you well !
The hereditary ATTR in my family is not well documented. I know the past few generations died of heart problems. My mother departed at 81 with hereditary ATTR. I have been diagnosed at 81 but I am still hanging around. I suspect my walking every day, like my father, has delayed the onset until now of the diagnosis of hATTR. Just a theory but my doctor seems to think the same line of thought, that exercising delayed my need for the tamifidis (generic name).