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A MyAmyloidosisTeam Member asked a question 💭
Charlton City, MA

Suffer from wild type attr

March 2, 2024
 · 
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A MyAmyloidosisTeam Member

Hi I’ve been prescribed Gabapentin. It’s the best for me. I can’t take anti-inflammatory meds like Advil, Ibuprofen etc. Hope you find something that helps.

March 2, 2024
A MyAmyloidosisTeam Member

It's a pleasure hearing from u & appriciate & hug u back

March 14, 2024
A MyAmyloidosisTeam Member

I have Attr wild amyolodid & its gift of neuropathy i have tried all medication as well as all over the counter a 70 million $$$ industry for the past 2 years I have no pain but numbness which make it difficult balancing & fear of falling the best relife is walking ,stationary bike,& for balancing as well as retaining contact w ground with my research discovered nuro sensory by neboso which just got patented come in different grade & it works now I walking 1 to 2 miles daily w 80% balancing & minimal fear of falling
Naboso.com

March 9, 2024
A MyAmyloidosisTeam Member

Hi John! My husband also has wild type. Diagnosed last June as part of a workup for an aortic valve replacement due to aortic stenosis. He has been dealing with increasing nerve pain ans neuropathy in his right leg. Unfortunately, the Neurologist did agree to an EMG and nerve conduction study in Jan but doesn't see him til March 19. Our PCP started him on Gabapentin. It helps some, but many days he's forced to use a forearm cane. The Neurologist in November actually told him since he had just started Vyndamax, it should help the nerve pain because in the UK, they prescribe Vyndamax for neuropathy. Well, if that's the caee, it's been almost 5 months on Vyndamax and the neuropathy and pain is much worse. It's been very frustrating. I don't know if this helps or not!

March 6, 2024
A MyAmyloidosisTeam Member

Thank you for your answer I will look into it. John

March 3, 2024

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A MyAmyloidosisTeam Member asked a question 💭
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