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A MyAmyloidosisTeam Member asked a question 💭
Dallas, TX

Anybody having issues with numbness in the fingers I have non-hereditary cardiac AL

March 20, 2024
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A MyAmyloidosisTeam Member

Thank you Nancy! I think I’ve had Cardiac ATTR for a while now even though it’s just being diagnosed. I had carpal tunnel surgery about 12 years ago and trigger on all my fingers and that may have been the start right there. I have a appointment to see a hand surgeon at that I’ll ask for a test deposits, they find the confirm if it was caused by cardiac Att. Thank you so much for your response.

March 24, 2024
A MyAmyloidosisTeam Member

Hi James,
Is the numbness in both hands? If so, perhaps (like me) you have “bilateral carpal tunnel syndrome (CTS). The bilateral version of CTS is often a symptom of ATTR Amyloidosis. The amyloids can thicken your transverse carpal ligament, causing pressure on your median nerve. Here’s an overview of Carpal Tunnel Syndrome from Johns Hopkins. https://www.hopkinsmedicine.org/health/conditio...

I learned of my Amyloidosis after CT release surgery on my right hand last month. My wise surgeon collected a specimen of the carpal ligament for biopsy, and the tissue did have amyloid deposits.
I’m so glad I had that CTS warning sign. My hand is much better already and now I am eager to get the same surgery for my left hand.
Best wishes, Nancy

Carpal Tunnel Syndrome
Carpal Tunnel Syndrome
March 20, 2024

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